The hospital discharge train started gathering pace once Hannah could feed well again and was off the continuous monitors. What a joy it is to have our little girl home!
Hannah is still snuffly and coughing as a result of her virus, but her heart and chest wound are doing well. There’s not much the doctors can do for the virus except let it run its course, and we can see it gradually lessening each day. It does seem to make her very clingy and not so keen on sleeping in her cot, but we’re happy to oblige the extra cuddles!
For now, we’re getting used to Hannah’s post operative instructions. To protect her chest and encourage her wound to heal the physio suggested we imagine we’re carrying a watermelon whenever we pick her up. Hannah’s a whole lot more wriggly than a watermelon, but I’ve still found it a helpful comparison! There’ll be no tummy time here either for about six weeks.
Hannah’s also on a couple of new medications to help her body adjust to her new heart circulation, keeping blood pressure stable, reducing fluid retention and making sure her blood doesn’t clot. At the moment giving them to her is a bit of a battle, but we hope in time she will get used to it. One in particular is neon yellow, I think everything will be stained for the foreseeable future!
It is such a relief to have 2/3 of her surgery plan complete. God willing, we won’t be heading back to hospital again until she is 3 or 4. That will be for Hannah to undergo the Fontan procedure. I imagine that time in hospital will again be both easier and harder then this time.
Though the last six months have been stressful, exhausting and very emotional, our Lord Jesus Christ has remained our constant source of peace and hope throughout. It is hard to put into words how thankful we are to God for swift, kind answers to prayer. We continue to trust him for whatever lies ahead.
Please give thanks for…
- Our beautiful girl and that we are once again home with her
- The medical team at the Children’s Hospital at Westmead
- So many prayers answered
Please pray for…
- Hannah’s continued recovery, for her chest to heal quickly and without too much discomfort
- Wisdom for us caring for Hannah at home particularly in the first few weeks of reduced activity
- Our trust to continue to be in Jesus and not ourselves
Praise the Lord. Praise the Lord, my soul. I will praise the Lord all my life; I will sing praise to my God as long as I live. – Psalm 146:1-2