Waiting waiting waiting

Therefore do not be anxious about tomorrow, for tomorrow will be anxious for itself. Sufficient for the day is its own trouble. – Matthew 6:34

Only a few weeks ago, I thought we might be home by now. But I am a slow learner! Hannah’s operation has now been delayed 3 times, most recently on Thursday afternoon. It is now scheduled for mid-September, several weeks away.

The surgery lists are fickle – there have been other babies and children needing their surgery more urgently than Hannah. That in itself is a blessing, Hannah has been well and her oxygen levels have remained good, meaning her shunt is doing its job. Sometimes I think it could be easy for us to feel resentful of the other children and families who have taken Hannah’s place, or of the system itself. The continual changes do use up lots of emotional energy, and I can’t help but be apprehensive when ‘no caller ID’ pops up on my phone as that’s usually the hospital calling. But we’re thankful that God has provided the system that we have, and for those who have the unenviable task of managing all the different patients.

The longer passage from Matthew’s gospel that the verse above comes from was part of my daily devotional several weeks ago, and since then I have tried to keep it front of mind.  I think it rings true for how we’re currently feeling – there’s no use worrying about what might happen and when, what’s more important is to trust that God is Lord over all of it. That is of great comfort.

As I had already started packing last week I thought I would share some of the items which make our hospital stay a little easier…

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Lite n’ Easy meals: these worked well last time, can be stored easily at the hospital and means that we have regular meals which is important in ICU where it’s hard to keep track of time!

My Bible and devotional book: Stott’s three section plan for the year in “Through the Bible, Through the Year” started last week, and so far I have found it helpful to have a set passage and commentary to read each day.

Coffee supplies: we couldn’t go away without the Aeropress, hand grinder and some good beans! This is Gus’s forte and it’s nice to have a routine each morning.

A snuggle rug: when Hannah first comes out of surgery I will be expressing and she will be fed through a nasal gastric tube again. I plan to share the snuggle rug between Hannah and I so that we can enjoy each other’s scent. Something to help before we’re able to have cuddles.

Pink hair towel: a creature comfort to use alongside the hospital towels.

Black and white bag: I lost one set of tubes for the expressing pump last time (whoops!), and so using a distinctive bag helps make sure I keep track of my set and labels for storing Hannah’s milk.

Lip balm and moisturisers: to help with the dry air of the airconditioning.

A portable battery charger: prolongs our phones on during the day.

Please give thanks for …

  • The extra time that we’re able to spend with Hannah before her surgery
  • Hannah’s good health and development
  • Our friends and family and their ongoing love and support

Please pray for …

  • The operation to go ahead at the right time
  • Hannah to continue to be healthy
  • Our trust to be in God’s will for us and Hannah and not our own

This is the day that the Lord has made;
    let us rejoice and be glad in it. – Psalm 118:24 

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